Hi! My name is Norma Kennedy Plourde, and I live in Baker Lake, New Brunswick, Canada. I happen to have Cystic Fibrosis. My CF affects mostly my lungs and my digestive system. I get frequent respiratory infections, so I take antibiotics a lot, and my pancreas doesn’t secrete enzymes, so I take pancreatic enzymes, plus a lot of other medications.

I also happen to have Rheumatoid Arthritis. I am a 45 y.o. woman, have been married for 25 years, and am fortunate enough to have a beautiful, healthy 23 year old daughter without CF. I am a Registered Nurse, and worked in a hospital setting for 9 years, but no longer work due to my illnesses.

I would like to educate and inform as many people as I can about CF. It is a genetic disease that affects approximately 3,000 people in Canada, and 30,000 in the US, plus many more throughout the world. It is a disease that affects the exogenous secreting glands of the body, and generates thickened secretions, therefore blocking proper functioning of certain organs.

The organs most affected are the lungs and pancreas, therefore affecting breathing and digestion, but certain other organs are affected also. There is no cure as of yet, but we hope there soon will be. Research is ongoing, and great strides are being made! Whereas 30 years ago, not many people with CF lived past childhood, nowadays many can live into their 30’s or more.

Unfortunately,  many people with CF are still dying way too early. Please support CF research…that is our only hope. I hope that this site will help you to learn more about CF.           

 http://www.cysticfibrosisinformation.org.uk.tc

                                                                         See my site:         http://www3.nbnet.nb.ca/normap/CF.htm

Want to slim down fast for that beach vacation or high school reunion? While there are many things you can do to shed pounds, losing weight too quickly, like any sudden change to your body, can be dangerous. While fad diets, diet pills, and fasting may indeed induce rapid weight loss, these methods can cause you to lose muscle and may also injure your heart and other organs fairly quickly. The best solution? Do not go for an overnight miracle. Instead, follow these steps to lose fat rapidly, healthily, and sustainably.

Steps   

1. Determine your daily calorie intake. Losing weight is simply a matter of expending more calories, through exercise and your daily activities, than you take in. Exercise alone would not make you lose weight if you are still taking in more calories than you burn. However, eating less and exercising more will only decrease your resting metabolic rate, which accounts for roughly 60-80 percent of daily calorie expenditure. Therefore you should exercise harder and eat more protein dense, clean foods; making your calories burned not too far off from your calories taken in will raise your metabolism and allow you to burn fat effortlessly.
   • Write down all the things you eat on a typical day. Carry a small notebook with you and jot down every snack, every drink, and the contents of every meal. There are also great websites that you can use to keep track of calories, get recipes, and help achieve your goal. Do not forget to include the pats of butter or the spoonful of sugar in your coffee. It is best to do this for at least a couple days.
   • Do an itemized calorie count. When possible, write down the number of calories in each thing you eat as you eat it. Keep in mind that the serving size container is often considerably smaller than the serving you actually eat. Look up the calorie count on the internet for foods that do not have calories listed on the container or for fast food meals. You do not have to be 100% accurate, but you do want a good estimate of the number of calories you are taking in.

1. Go over the list and decide which foods to cut out or reduce. Cutting calories is usually a lot easier than you might think. For example, that daily tall latte in the morning may pack 500 calories. Since a pound of flab (lost or gained) is roughly equivalent to 3,500 calories, replacing that rich beverage with black coffee can help you lose a pound a week. Other easy cuts include salad dressing (salad dressing is the number one source of fat in the average American womans diet) soda pop, candy, and butter. Look at the nutritional information for the foods you eat, pay special attention to your intake of saturated fats and empty calories (high-sugar foods). You do not need to cut these things out entirely, but if you reduce your intake of high-fat, high-calorie foods you will lose weight faster.
2. Seek out alternatives to the unhealthy foods you have identified. You can simply reduce the amount of soda you drink or mayonnaise you put on your sandwiches, or you can substitute healthier choices. Drink water instead of soda, for example, or use mustard instead of mayo. Low-fat and low-calorie options are also available for most foods, and many of these are natural (although some are made with strange chemicals) and tasty.
   • Choose lean meats. Chicken and fish are both very low in fat (and certain fish like salmon, sardines, and fresh tuna are an excellent source of antioxidants, which are also beneficial to your health), so aim to replace some or all of the beef or pork in your diet with these foods.
   • Replace high-calorie side dishes with healthier alternatives. Many people get a ton of calories from side dishes such as macaroni and cheese, French fries, or potato salad. You can eat healthier and lose weight by replacing these with vegetables and salads. Pre-made salads are practically effortless, and when accompanied by a reduced-calorie dressing or no dressing at all, they are weight-loss gold.
   • Start your days off right. A fattening breakfast of bacon and eggs or a pastry can be replaced with yogurt, oatmeal, high-fiber, low-sugar cereals; or fresh fruit or fruit smoothies. However, for those on a low carb diet bacon and eggs are a great combo for breakfast, since neither have carbs. 

1. Plan your meals. Look for healthy, delicious meals online or in your cookbooks, and create a menu for the week. Make sure that your meal plan reduces your total calorie intake: you are not going to lose weight if you consume the same amount of calories by eating different foods. Make a list of what you will need for these meals, and –except for a few snacks, of course– do not stray from your list when you get to the market. Planning your meals helps ensure you get a balanced diet and reduces the temptation to stop off for fast food or order a pizza. Remember, it is easier to stick to your shopping list if you shop when you are not hungry.
2. Watch your portion sizes. Opening a bag of rice cakes and eating all of them in one sitting is not going to help you lose weight. When eating chips, nuts, or dried fruit put a portion in a small bowl and then put the bag away. That way you would not mindlessly eat a larger portion than you had intended.

1. Graze on healthy snacks. Just because you are getting healthy does not mean you can not snack. In fact, eating small meals and snacks throughout the day (grazing) has been shown to aid weight loss (compared to eating three large meals) by keeping metabolism steadier. Pick snacks that are low in calories and fat and high in fiber (dried apricots, nuts, rice cakes, fruits, baby carrots, baby tomatoes, and so on). Vegetables are generally very low in calories, very high in fiber, and full of flavor and nutrition. Avoid starchy vegetables like potatoes, and try to eat vegetables plain, without fatty dressings or dips. Fruit also makes a good snack. Fruit contains more soluble fiber than vegetables, which slows your bodys absorption of carbohydrates, thus releasing energy slower (preventing sugar highs) and keeping you full longer. Fruit juices are okay, but are not a replacement for the real thing. You need that fiber, and juices often have more calories than the equivalent serving of fruit–as many calories as soda! Be careful with dried fruits, because without the water, you tend to eat more, and fruits, when dried, are calorie-rich per ounce.
2. Get more fiber. There are many myths about fiber, but there is science to back up its helpful role in the diet. Fiber keeps the right amount of water in your intestines, making your digestive system work more efficiently and helping to keep you regular. Thus, just eating enough fiber may help you feel slimmer in just a day or so. There is also evidence that fiber in the diet can help prevent stroke and heart disease, ease the effects of diabetes, and may even directly help in weight loss.

1. Drink plenty of water. Adequate water is essential for health, and a great many people simply do not get enough. What is more, if you are chronically dehydrated, your body will retain water in unflattering places, so if you make sure to get plenty of fluids you can start visibly trimming down in as little as a day. Remember, the more you exercise, the more water you will need.
2. Exercise. Remember, you can lose weight either by decreasing your calorie intake or increasing the number of calories you burn. Any health strategy should include both, but if you want to lose weight fast, exercise is essential.
3. Perform high-level aerobic activities. Moderate aerobic workouts incorporating jogging, brisk walking, cycling, or aerobic machines or classes not only burn calories–they also keep your heart healthy. Swimming is also great, especially if you are quite overweight or have joint problems, because you can get the same benefits of running–typically burning even more calories–without the wear and tear to your body. Try to get at least 30-40 minutes of aerobic exercise at least three or four days per week.
4. Pump some iron. Resistance training (weight training) can help both sexes stay lean by building muscle and raising metabolism. The fact is, hours and hours of aerobic exercise would not help most people lose weight fast because your metabolism drops back to normal fairly quickly after stopping the exercise. If you gain muscle, however, your bodys resting metabolism (the amount of calories you burn when you are just sitting still) increases, because muscle requires a lot of calories to maintain. Studies have shown consistent weight training to raise the bodys metabolism by 15%. This means an average woman might burn 200-300 more calories at rest every day! Resistance training is the gift that keeps on giving!
5. Rest properly. This means not only taking at least 24-48 hours between strength training the same muscles (and taking 1-2 days off from exercising each week); it also means getting enough sleep at night, since sleep deficiency impairs your ability to lose fat.
6. Be realistic. Do not expect a miracle. Healthy weight loss can be achieved fairly quickly, but you will need to be patient. In addition, be sure to set realistic goals. Make sure that the weight you are trying to reach is a healthy weight for you, and understand that gaining pounds of muscle will help you lose fat, be trimmer, and look better even though you do not actually lose any weight. Your goal is a healthy body, not a number of pounds!
7. Make adjustments. A successful weight loss strategy based on reducing calorie intake and increasing activity can be adjusted to maintain your desired weight once you reach it. Unlike dieting, this method is sustainable–it is a lifestyle change, not a binge-and-purge exercise. Slowly adjust your diet and exercise to include more weight training and calories, to where it is comfortable. If you do gain any weight back, you want that weight to be lean, toned muscle, not fat. In addition, weight training, no matter what your age, prevents muscle atrophy and can help stave off osteoporosisis.
8. Go to: http://www.looseweightfast.us.tc

Cystic Fibrosis (CF) is the most common recessive genetic disease. CF affects approximately 30,000 children and young adults. It occurs in approximately one of every 3,300 live births. The median age of survival is 31 years. The most common symptoms of CF are salty-tasting skin; persistent coughing, wheezing or pneumonia; excessive appetite but poor weight gain; and bulky, foul-smelling stools. CF causes the body to produce an abnormally thick, sticky mucus. This abnormal mucus clogs the lungs and leads to lung infections. The thick CF mucus also obstructs the pancreas, preventing enzymes from reaching the intestines to digest food.

A child must inherit a defective copy of the CF gene (one from each parent) to have cystic fibrosis. Each time two carriers conceive a child, there is a 25 percent chance that the child will have CF; a 50 percent chance that the child will be a carrier; and a 25 percent chance that the child will be a non-carrier.

Cystic Fibrosis is not contagious, and therefore cannot be transmitted from person to person.

The treatment of CF can include postural drainage (also called chest physical therapy [CPT]), requires vigorous percussion (by using cupped hands) on the back and chest to dislodge the thick mucus from the lungs. Antibiotics are also used to treat lung infections. CF also can affect the digestive system, the body does not absorb enough nutrients, therefore the need to eat an enriched diet and take both replacement vitamins and pancreatic enzymes.

 http://www.cysticfibrosisinformation.org.uk.tc/ A small directory about Cystic FibrosisRead it first!  

Cystic Fibrosis Foundation:The Cystic Fibrosis Foundation (CFF) was established in 1955 to raise money for research to find a cure for cystic fibrosis (CF) and to improve the quality of life for the 30,000 children and young adults with CF.

American Airlines Celebrity Ski Event: to benefit the Cystic Fibrosis Foundation: The Yourman Family has chosen the 1999 American Airlines Celebrity Ski Event as their fundraising project for the year. All money collected will be donated to the CFF. Make checks payable to the Cystic Fibrosis Foundation.

TOBI®: Recently approved by the FDA, Inhaled TOBI® is available! Link for more information.

CF Web: An informative site. Provides links and information about cystic fibrosis.

Cystic-L List-Serv:Cystic Fibrosis Discussion/Support Group List. An unmoderated discussion group of people impacted by Cystic Fibrosis. We have people with CF, parents, friends, doctors, lovers, and relatives. It is thoroughly non-technical & has a bunch of people wondering how one little chloride channel can affect so much! To Subscribe, type: “subscribe cystic-l firstname lastname” and e-mail to: LISTSERV@HOME.EASE.LSOFT.COM

Surviving Cystic Fibrosis:An informative booklet written to help newly diagnosed families in the State of New Jersey. Much of this information can help other families in other states by providing direction.

CFRI Research:CFRI’s mission is to fund cystic fibrosis research and to offer educational and support programs for people with CF and their families.

Amazon Books: A great resource for books about cystic fibrosis, as well as other reading material! Check out this book by David M. Orenstein, “A Guide to Patient and Family”. A great resource for newly diagnosed families as well as old-timers.

Scandipharm: Try out their delicious ScandiShakes in vanilla, chocolate and strawberry and ADEK vitamins!! Find out about their Comprehensive Care Program for Cystic Fibrosis and the NEW CareFirst for CF(sm) Program.

American Dietetic Association: Provides information to promote optimal nutrition, health and well-being for all.

Boomer Esiason’s Heroes Foundation: The Foundation is a partnership of leaders in the medical and business communities joining with a committed core of volunteers to provide financial support to research aimed at finding a cure for cystic fibrosis. The Foundation works to heighten awareness of cystic fibrosis and to provide a better quality of life for those affected by cystic fibrosis.

CF Care: Sponsored by Ortho-McNeil Pharmaceutical, this site provides a resource for knowledge and hope for the CF community.

If you would like to see other information on this page:

Many thanks to Celine Dion for her committment to Cystic Fibrosis

 http://www.cysticfibrosisinformation.org.uk.tc

                                                                         See my site:         http://www3.nbnet.nb.ca/normap/CF.htm

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